Monday was my 46th birthday and likely my last. Anything awesome I should try after I die?
First, some background. My name is Aaron Winborn, and I am a developer for Drupal, which is an open source content management system, used to make web sites. I also the father of two young girls, who bring much joy into my life, and married to a beautiful woman. You may have heard of her, her name is Wonder Woman.
Just over two years ago, I was diagnosed with ALS, also known as Lou Gehrig's Disease. In short, that means that my mind will increasingly become trapped in my body as the motor neurons continue to die, and the muscles atrophy and waste away, until my diaphragm dies, bringing me with it.
My hands and arms are already completely paralyzed, and I'm confined to a power wheelchair. My diaphragm strength is largely diminished, and I am using breathing assistance 24/7, and I am at imminent risk for respiratory failure.
Even if I am fortunate enough to survive another year, which is only likely if I opt for a tracheostomy, my chances of surviving much longer become increasingly unlikely, as pneumonia becomes a specter haunting the late stages of ALS. There is no cure for this awful disease. My family gets to take care of all my needs and wipe the drool off my face, until I die, and leave them to pick up the pieces.
But yes, there is a silver lining to this all, such as it is. Kim Suozzi made a similar plea to the Internet a year ago today, and came up with the brilliant idea of freezing her body in the hopes of a distant advanced technology being able to revive her someday. Her body now rests at liquid nitrogen temperatures. http://www.reddit.com/r/AskReddit/comments/uvaqe/today_is_my_23rd_birthd...
I approached the organization responsible for raising the funds to help her out, the Society for Venturism, last November, and they agreed to take on my case as well. http://venturist.info/aaron-winborn-charity.html
But I am actually telling you all this in order to come up with a sort of reverse bucket list.
I've had a full life, with no regrets. I've done some travel, have lived in some cool places, like the Netherlands and London. I've made lots of good friends, and continue to do so. I've contributed to my debt to society, working hard throughout my life, as a teacher, a waiter, an open source software developer. I've worked with a few interesting characters, like Elisabeth Kubler-Ross, and even lived in a Buddhist monastery before I met the woman of my dreams.
But I'm not ready to hang up my jacket quite yet.
When I was ten, I came up with three things that I wanted to be when I grew up: a teacher, a writer, and an astronaut. I've been two of the things, which is not bad. As an aside, I once told that to some people, and was asked, "Oh, what did you write?" To which I replied, "I didn't say I've written anything."
Joking aside, I'm looking for some grandiose ideas of things to do after I've died, and have hopefully been revived. And by that, I mean the sky's the limit. Don't worry about whether something seems technically feasible. This is your opportunity to think big. Like, go skinny dipping in the methane oceans of Neptune.
I want to do so much more with my life, but it's not in the cards this go around. I've become a spectator in life, living vicariously through my daughters, and relegated to typing with my eyes at fifteen words per minute on a good day.
But I'm not complaining. I awaken each morning as I always have, excited to take on the day. This is just a way to do some more brainstorming, to come up with a list of things to do during the next century, should we be so fortunate.
PS This question was originally banned from the Internet at http://www.reddit.com/r/AskReddit/comments/1g7h69/anything_awesome_i_sho...